Our first family picture together
Monday, August 22, 2011
Day Thirteen, Going Home...
We went up to visit and feed Beckem yesterday afternoon and the nurse practicioner came in to see Beckem and I asked her what the chances were of going home late tonight instead of in the morning and she said he had to talk to the doctor. She went and discussed with the NICU doctor and came back and said, "well, he thinks it's ridiculous to wait until late tonight and said you could go home now" It felt like I was FIVE again on CHRISTMAS morning. It was such a good feeling!! So we got to bring Beckem home yesterday. It's so good to be home!!
Sunday, August 21, 2011
Day Ten, Eleven, and Twelve
Day ten and eleven were not so good on eating, he struggled a lot. It was frustrating because it's all up to him and he just needs to eat to come home. I miss him so much.
Day twelve was a really good day. Beckem actually pulled out his own feeding tube and they decided to leave it out and see what he would do and he has done GREAT so far. If he keeps it up he will be coming home really soon. He is such a sweet boy and I love all his little facial expressions. The boys want to hold their baby brother so bad. We went to my parents the other night and Jake was there and Kyson got to hold him and he did not want to give him up. He LOVES babies and I am afraid he is going to love his baby brother a little too much. It will be cute to see them hold him for for the first time.
Wednesday, August 17, 2011
Day Nine
Day Nine...Today has been such a good day. Beckem ate so good last night for Zac at ten and he continued to do so good throughout the night and into today. He ate all of his bottle six times out of eight in the past 24 hours. We are so excited. If he keeps it up, he will be coming home on Friday hopefully. I get so excited thinking about it. I miss my little guy so much and it doesn't get any easier to leave him, I wish so bad I could stay up with him all day and night, but I also want to be home with Teg and Ky.
Right now my daily routine is usually something like this. . . Wake up, get the boys breakfast and dressed and take the boys to whoever is watching them for the moment, run to the hospital and feed Beckem his 10:00 feeding, come home play with the boys and get them lunch, take them somewhere else to be watched, run to the hospital for the 1:00 feeding, come home and cuddle with the boys til they fall asleep, my mom has been going up to do the 4:00 feeding while I take a nap with the boys, which has been really nice. Zac gets home about 6:00 and we run the boys where ever their next babysitter is (usually Nana and Papa's or Grandma and Grandpa's), Zac and I then go up to the hospital for the 7:00 feeding and cuddle him for a little while, then we go pick the boys up Zac brings us home and I get the boys bathed and in bed while Zac runs back up to the hospital for their "bonding time" and another feeding at 10:00. It's quite the busy schedule we have lately, but it's the best we can do to try to love all our kids as much as possible. It's hard, but hopefully not too much longer and little Beckem will be home and we can all be together as a family.
Tuesday, August 16, 2011
ONE WEEK OLD
August 15, 2011: My baby is one week old. He was able to be taken off his air!! YEAH!! Now the only thing left to get out of the NICU is eating. He needs to eat 46 mL's every THREE hours, which I think is a little much, but that's what he has to do so I don't have much say in that. He is eating pretty good. Zac got him to drink 33 mL's but that was all he wanted. Hopefully we will get up to his full feedings and that feeding tube can come out and he can come home and play with us. He is so cute and I wish I could have him home to hold all the time!!
Day Six
Day Six: Beckem is still on his air at 1 liter but he is looking so good. We are still trying to get him to eat from a bottle, but each feeding is a little better. He is so sweet and I love that I get to hold him all the time now. They have moved him from his isolette to an open crib so it's nice, I feel like we are making progress.
Sunday, August 14, 2011
Day Five
Day Five: It was such a good day. I got to hold Beckem for an hour in the morning. He ate from a bottle three times throughout the night. I was so excited when I heard this. He still is getting a little bit of feedings in his feeding tube because he is not drinking the whole amount of food that he needs, but to drink from a bottle was a huge step. He is no longer getting fluids in his IV, only antibiotics and hopefully we will be done with those soon. He is still on his air flow at 1.5 liters but hopefully we can get him off that pretty soon.
When Zac and I went up in the evening to see him we found out they moved him to room 3. I was SO EXCITED, he was in room 1 and room 3 is one step closer to the door to go home : ) He looked so good last night. We got to hold him for almost two hours, we even got to feed him for our first time!! I got to change his diaper too, it felt so good to be able to take care of my own baby. His new room is so nice with a great view, he definately moved up in the NICU world : ) Each day we are taking little steps but hopefully it won't be too many more days until I can just love my baby all day long.
This week has been pretty rough on the boys. They have been completely out of their routine and are so worn out from being passed around so much while we go up to the hospital. I was getting ready in the morning and Kyson came in to see me when he woke up, I finished getting ready and looked down and he fell back asleep by my feet and was snoring. They have been through a lot this past week. They still have been such good boys though, I can't wait until we can get back to our daily routine and all be together as a family.
Saturday, August 13, 2011
Day Four: Ice Cream and Isolettes
Day four was kind of a set back. Beckem had to be put back on high flow because he couldn't handle breathing on his own. His breathing rate went up and he started retracting really bad. They tried bottle feeding but he didn't want anything to do with it. We are just taking it one day at a time.
The NICU does a really cute thing for all the siblings. On Fridays they meet with all the brothers and sisters and explain to them about the NICU and tell them what is going on with their baby, then they color a picture for the baby and have ice cream. After they were done with all of that they got to scrub in and go see their sibling. The boys were SO EXCITED to finally get to see Beckem for the first time. It was so fun.
When Zac and I went up for our night visit Beckem actually had been requiring his air flow to be up to 5 liters which is a hugh set back, but by the time we got there he was down to 3 liters. The nurse let us hold him as long as we wanted to, it was so nice. I could have sat and held him all night long, but he is still under the lights so we put him back under the lights after about two hours. It felt like heaven holding him for so long. It's hard to see your sick baby and not get to love them. Hopefully he will be doing better tomorrow and we will be making progress towards coming home.
Friday, August 12, 2011
Day Three
Day 3: Beckem has been able to tolerate his air flow to gradually be turned down and all day was on 1 liter, when we came in to see him he was actually breathing completely on his own and doing great. It was such a relief so see. He is now under bili lights because his billirubin spiked pretty high, but that's no uncommon for my boys. All of them have been under lights. They moved his tube feeding to his nose and we are hoping that will help him tolerate more feedings. All through the night last night he threw up all of his feedings but has done okay throughout the day. He is making small progress, but still has a ways to go. I got to hold him for an hour and it was SO NICE!! I haven't got to hold me that long ever so it was nice. We didn't get to hold him when we went back up to see him because we are trying to let him have as much light exposure as possible so his bili will come down faster. He is looking better and better each day and hopefully soon he will be able to eat from a bottle and he will get to come home with us. Until then we are just praying everyday for him and enjoy holding his hand when we can. Love you tons Beckem!!
We have the greatest neighboorhood ever!! My good friend Bre had a swim party at her house and the boys had so much fun jumping on her tramp and playing with all the kids. It's fun to see so many kids have fun together. There were at least 20 kids there all playing and having tons of fun. I am so grateful we have such great neighbors and friends.
Thursday, August 11, 2011
Day Two's Progress
Beckem at 36 hours old
We went up to see him in the morning and they were able to turn his flow from 5 liters to 4 liters. His IV went bad through the night so they tried a line in his umbilical cord that didn't work, they tried a PICC line and that didn't work, so they were finally able to get two more IV's in his little head. They said he just doesn't have any veins and is a really hard stick for IV's, but at least they were finally able to get those IV's for him.
He is currently on two antibiotics and IV fluids with protein and stuff in it to help him. He still was unable to eat in the morning due to his high flow of air so they were planning on placing a feeding tube to help keep his stomach and intestines active.
He is making progress, but still breathing about 100 times a minute and really working to breath. We went up about four times to see him and finally last night they let us hold him again. It was so good to sit and be able to love him. The did end up placing his feeding tube and gave him his first feeding but he threw it all up. With all that air he is getting it sometimes goes into his stomach so they are trying to keep the air off his tummy hoping that he will be able to tolerate his feedings.
He is making progress, but still breathing about 100 times a minute and really working to breath. We went up about four times to see him and finally last night they let us hold him again. It was so good to sit and be able to love him. The did end up placing his feeding tube and gave him his first feeding but he threw it all up. With all that air he is getting it sometimes goes into his stomach so they are trying to keep the air off his tummy hoping that he will be able to tolerate his feedings.
I wish so bad I could just love him all the time, but that day will come. It will just be nice to see him get his breathing under control and not struggle so much to live. It's amazing how much love you can have for your children and how helpless you feel in this situation. Even though it's hard, it could definately be worse. I am just grateful he didn't come any earlier than he did. This whole pregnancy has been a battle but we made it as far as we could and let's hope in a couple of weeks Beckem will be strong enough to come home and play with his brothers.
That's been really hard for them not be able to see him, but I show them all the pictures. Yesterday I was explaining to them how he is sick and he is trying to get strong so he can come home and I showed the boys his pictures from our visit and Tegan said, "Oh look how sick he is" it was so sweet. They ask about him all the time, but it will be nice when they can actually meet their little brother.
He's here
We went in on Sunday night with contractions about every 30 seconds to a minute. After labor and deliver watched me for about five hours I was consistently contracting, but not dilating so they sent me home at about 3:00 am. I woke up Monday morning and was hurting so bad all day Monday. Finally that afternoon I told Zac we needed to go back up there. So we headed up to McKay AGAIN and I had dilated more so they admitted me. My contractions were hurting so bad. Thank goodness for epidurals.
They ended up admitting me about 4:oo and started my epidural about 6:30. Dr Seale was going to go to a movie with his family so he was going to wait and break my water after the movie, which I was okay with and actually felt bad for taking time away from his own family. After he left he came back about an hour later and told me the canceled the movie because the projector broke. Sad for his family, but lucky for me I guess. So, Dr. Seale broke my water about 8:00ish. I slowly progressed about one an hour and at about 10:30 she came in a checked me and I was at a seven. We did the hole turn sides and everything and she walked out of the room. Right then my lips started to chatter, I felt like I was freezing and I felt like I really needed to push. I called Andrea back in and she checked me again and sure enough, I went from a seven to a complete in about one minute. She hurried and called Dr. Seale while I tried so hard not to push him out. When Dr. Seale got there I pushed one little push and he was out. I couldn't believe it, it went so fast.
Beckem Jesse Mason was born at 11:07 p.m. He weighed 6 lbs 2 oz, 19.5 inches long. After I got to see him for just a second they took him to the transition nursery where he was really struggling to breath. We got to go sit with him and he was retracting, grunting and nasal flaring pretty bad. They were hoping he would pop out of it, but after about four hours the NICU doctor decided it would be best to admit him. So they admitted him the the NICU and placed a breathing tube in his throat. Even though it was hard to see him lying in the NICU intibated it was so much easier to see him not struggle so hard to breath. There is nothing harder than sitting there watching your new son struggle so hard to stay alive. You feel so helpless!!
The big thing around his mouth his is intibation tube.
Because he is struggling so hard to breath any kind of stimuli is hard on him because his whole body is trying to put all his energy into breathing so we couldn't hold him and could only touch with a firm hold and we tried not to bug him for too long.
They were finally about to take the breathing tube out and it wasn't until about 1:oo that afternoon that we finally got to hold him for the first time.
We went back to see him later that night and they told us that he took about an hour or two to recover from all the stimuli of us holding him so we weren't able to hold him again that night. It's so hard to watch your baby be sick and not be able to hold him or comfort him, but I know that he is getting the best care and the most important thing right now is getting him to not fight so hard to breath.
Once they took his breathing tube out they put him on high flow oxygen. It's like a c-pap machine that forces his lungs to stay open. They put him on five liters and will slowly turn it down if he tolerates is. They told us it's like sticking your head out the car window at 80 mph, so because of that he can't eat yet because he can't get that much force of air and drink at the same time.
We decided to go home that night because the other boys were missing us so much. That drive from the hospital to my mom's felt like a 10 hour drive. It was comforting to know that your son is in such good care, but it was so hard leaving the hospital without him.
Dinosaur Park
Last Saturday was free admission for everyone to the Dinosaur Park so we took advantage of it and took the boys to see the Dinosaurs. Tegan kept thinking the dinosaurs were real and he kept asking, "mom and dad, is that one nice or mean and is it going to get me??" We had to keep telling him they were not real and we even let him touch a couple, but I don't think he believed us. The sound effects really didn't help us out any.
Kangaroo Zoo
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